Proudly supporting ASAP's fundamental goals of research, education, and support to those affected by Syringomyelia, Chiari Malformation, and related disorders.
Molly's Story
Living with painful genetic disorders while finding purpose in teaching
WUSA9 9/2022 SHARLA MCBRIDE
Molly Lichtenstein brings enthusiasm, and love to her kindergarten class each day, while quietly battling genetic disorders that put her in constant pain.
2024 EVENTS
ASAP
THE AMERICAN SYRINGOMYELIA & CHIARI ALLIANCE PROJECT, INC. IS A NON-PROFIT, 501(C)(3) DONOR-SUPPORTED ORGANIZATION WHOSE MISSION IS TO IMPROVE THE LIVES OF PERSONS AFFECTED BY THESE DISORDERS WHILE WE FIND A CURE.
CHIARI MALFORMATION
A SERIOUS NEUROLOGICAL DISORDER WHERE THE BOTTOM PART OF THE BRAIN ("CEREBELLUM") DESCENDS OUT OF THE SKULL AND CROWDS THE SPINAL CORD. THIS PUTS PRESSURE ON BOTH THE BRAIN AND SPINE, AND DISRUPTS THE NORMAL FLOW OF CEREBROSPINAL FLUID (CSF).
SYRINGOMYELIA
A SERIOUS NEUROLOGICAL DISORDER WHERE A FLUID-FILLED CYST ("SYRINX"), DEVELOPS INSIDE THE SPINAL CORD, STRETCHING THE CORD AND DAMAGING NERVE TISSUE. UP TO 90% OF CASES INVOLVE A CHIARI MALFORMATION, SPINAL CORD INJURY, TUMORS, AND ARACHNOIDITIS. WHY SYRINX'S FORM ARE NOT KNOWN, BUT MIGHT INVOLVE THE ABNORMAL FLOW OF CEREBROSPINAL FLUID (CSF).
