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Proudly supporting ASAP's fundamental goals of research, education, and support to those affected by Syringomyelia, Chiari Malformation, and related disorders.

Molly's Story

Living with painful genetic disorders while finding purpose in teaching

WUSA9    9/2022     SHARLA MCBRIDE

Molly Lichtenstein brings enthusiasm, and love to her kindergarten class each day, while quietly battling genetic disorders that put her in constant pain.

2024 EVENTS

Walk & Roll for a CURE logo

10TH ANNUAL

Walk & Roll for a CURE

September 21, 2024

 

Bretton Woods Recreation Center

Germantown, Maryland

Molly's Mulligan logo

7TH ANNUAL

Molly's Mulligan

September 23, 2024

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Worthington Manor

Urbana, Maryland

Amazing Auction logo

8TH ANNUAL

Silent Auction

September 21, 2024

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In-person at the Walk & Roll

Bretton Woods Recreation Center

Germantown, Maryland

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ASAP

THE AMERICAN SYRINGOMYELIA & CHIARI ALLIANCE PROJECT, INC. IS A NON-PROFIT, 501(C)(3) DONOR-SUPPORTED ORGANIZATION WHOSE MISSION IS TO IMPROVE THE LIVES OF PERSONS AFFECTED BY THESE DISORDERS WHILE WE FIND A CURE.

CHIARI MALFORMATION

A SERIOUS NEUROLOGICAL DISORDER WHERE THE BOTTOM PART OF THE BRAIN ("CEREBELLUM") DESCENDS OUT OF THE SKULL AND CROWDS THE SPINAL CORD. THIS PUTS PRESSURE ON BOTH THE BRAIN AND SPINE, AND DISRUPTS THE NORMAL FLOW OF CEREBROSPINAL FLUID (CSF).

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SYRINGOMYELIA

A SERIOUS NEUROLOGICAL DISORDER WHERE A FLUID-FILLED CYST ("SYRINX"), DEVELOPS INSIDE THE SPINAL CORD, STRETCHING THE CORD AND DAMAGING NERVE TISSUE. UP TO 90% OF CASES INVOLVE A CHIARI MALFORMATION, SPINAL CORD INJURY, TUMORS, AND ARACHNOIDITIS. WHY SYRINX'S FORM ARE NOT KNOWN, BUT MIGHT INVOLVE THE ABNORMAL FLOW OF CEREBROSPINAL FLUID (CSF).

MOLLY'S STORY

A 30-year-old young woman who has had over 60 surgeries because of these conditions and has made it her goal to raise funds so that other individuals with these conditions may have an easier time.

Molly Lichtenstein
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